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Channel: Merrimack Valley Moms » Neurofibromatosis
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Helping Children Move on from a Devastating Loss

By Dawn “If you love something set it free, if it comes back it is yours if not….then it wasn’t meant to be” If only life were that plain and simple! One of the first signs of a failing relationship is...

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Dylan’s Tree

By: Dawn Thompson On December 16, 2004 we took out little man to Tufts Floating Hospital for Failure to Thrive. During out visit, the Dr. started measuring and counting these spots that Dylan had all...

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Finding Time

By: Dawn Thompson In this fast-paced, busy world, it’s difficult to find the time to do all the things we need to do, let alone the things we want to do. Choosing how to spend our time sometimes forces...

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Smarty Pants!

By: Dawn Thompson When Dylan was 18 months old, we were horrified to learn that he needed to have an MRI of his brain. He was just a little kid, why did we have to think about such things? We didn’t...

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A Fish Out of Water…Can Help Carry Groceries!

By: Dawn Thompson It’s hard to believe that just 3 months ago, Dylan was unable to sit up by himself, let alone swim in the deep end. Sure, he is 11-and-a-half, and there was not ONE good reason his...

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Cootie Bugs and Dinosaurs

By: Dawn Thompson The other day while we were in the Neurofibromatosis clinic, we learned about a new kind of dinosaur. I don’t really remember the name of the dinosaur but I do recall the nurse...

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Digital Friends

By: Dawn Thompson  Years ago, I would have never thought that someone I have never met in person could become such a valuable and meaningful person in our son’s life.  Because our son has a progressive...

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Climbing Mount Watatic!

By: Dawn Thompson My husband and I recently went away to enjoy some time with each other. This meant leaving our eleven-and-a-half-year-old behind with his older sister and grandmother while we were...

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A Patriot’s Day Celebration FULL of Surprises

By: Dawn Thompson  We headed out to Boston on Patriot’s Day not knowing what the day would bring.  To our delight, there were a bunch of unexpected circumstances that totally made our day.  Our first...

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If Today is a Good Day…

By: Dawn Thompson A doctor once told me, “If today is a good day, then, it’s a GOOD day!” At the time, my four-year-old was hospitalized for acute ataxia of unknown origin. He could not sit, stand or...

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